Wednesday, July 14, 2021

The Useless Helper

 Do you ever feel like you’re useless? Maybe you do. But you might not feel that way as frequently as I do. 

About five years ago—the summer before fourth grade—I woke up with horrible pain in my knees. It hurt to walk. When I was younger—say, four to nine years old or maybe even when I was a toddler; I don’t remember—I had hamstrings that were so tight it hurt all over my legs, my thighs especially. But it always went away by the next day. Worst case back then was that I took some Tylenol or ibuprofen and I got pain relief. This kind of pain was different. It was stabbing pain. My knees throbbed no matter what I was doing. My mom ended up calling my physical therapist after I complained of pain for two days straight. He said it was probably just a growth spurt.

Five years later—after at least six different medications, countless doctors, and an (inaccurate) diagnosis of fibromyalgia—here I am. The pain is manageable on some days, and nearly unbearable on others. The fact is, I don’t have the kind of time to sit around and nurse my aching hips. Or at least, I’m too stubborn to do that.

I am blessed with an understanding family who doesn’t pressure me to do things when I’m hurting. However, my pride kicks in. For example, I was helping out at my Nana’s garage sale and everyone was active, setting up folding tables, carrying boxes to different tables, and generally rearranging things. For the first thirty minutes of this, I was active, too, helping to organize the table that my sister and I were selling our stuff at. After that time, though, I was exhausted—and really, really frustrated. Most kids my age can run for a long time without getting super tired, much less move some things around at a garage sale. 

I was the first to sit down on a lawn chair, guzzling from a water bottle, grateful that my exhausted, aching feet were getting a break. Then I looked around at my family members, who were all scurrying around, effortlessly (at least, that’s what it seemed like) carrying boxes and things like that—all physical things that required legs that were “fully charged”, aka not super tired like mine were.

I felt so useless sitting in that chair. I was angry and I resented that my legs couldn’t cooperate for what I considered simple activities—especially since I had taken my medicine that morning, which admittedly, I’m not always so great about. I also resented that I didn’t get to experience a so-called “normal” childhood. As much as I hate that word—“normal”—I do feel like it has a point. But mostly, I was frustrated because the rest of my family seemed to not even get tired as they helped, while I probably sat in that lawn chair for longer than I had helped! It was annoying. 

Not to mention that it happened again! I was cleaning out my grandpa’s thousands of CDs (literally I have never seen that many CDs in all my life!) and putting them in boxes. There were so many that I maybe was boxing for an hour. I’m not complaining here, because I really like to help my family. I’m just saying there were tons! I was getting tired because the CDs were on a high shelf, which meant I had to stand up as I reached for them to put them in a box. My legs were shaking, which they do when they’re tired. (I have learned to read the signs.) My sister noticed and told me to go sit down; she would finish packing my grandpa’s CDs. It was a sweet offer, it really was. But I got mad (not really at her, but at my legs), and told her I was fine. I was not trying to be dishonest. I was trying to save my pride, which was a bit bruised though my sister had offered in the sweetest way possible. I just wished I could complete a chore without my legs giving out. Is that too much to ask? If I sound bitter, I’m sorry. I know how fortunate I am. I just get exasperated because I feel like I’m useless—no matter how many times my family tells me I’m not.

Monday, July 5, 2021

Reflection

 When you look in the mirror…. what do you see?

Some answers to this might be your hair, long or short, your height, tall or short, or maybe your eyes, whether you think they’re an interesting color or big, whatever the reason. Each of us see different things when we look in the mirror. Do we see what we consider our “flaws” or the features that we are proud of?

This past weekend, I was out shopping for clothes when I passed by a large mirror. I stopped, a bit in surprise and a little self-consciously. I had noticed my legs and the way they twisted when I walked.

Believe me, I was not surprised that my feet were turned in. I’m aware that I walk like that usually, except for when I’m unusually loose or if I’m thinking about my feet. But for some reason, on this particular shopping trip, it hit me that this is how people might see me. A dorky-looking (which I’m not ashamed of) little girl with twisted-in feet. To be clear, this is not something to be ashamed of. I have a disability, a difference, and that is perfectly okay! All I’m saying is that right then I felt a little self-conscious and a little too aware of how I might have been perceived. 

This might have bothered me for two reasons—one, because I work hard at physical therapy—until I’m exhausted, even—but as we all know, hard work doesn’t always lead to perfection. I am unbelievably appreciative of my circumstances, but at the store looking in that mirror I was a little depressed that my hard work hadn’t paid off quite as much as I had wanted it to. I know I am going to have to work hard, and I accept that. But I was bothered anyway.

The second reason that I was bothered is because I frequently make the mistake that a mirror is an accurate perception of what others see. This is not true. Mirrors cannot show our hardships and our struggles, our triumphs or our joys or our personalities, or our defining attributes. A mirror can only show what’s on the outside, and maybe not even an accurate depiction of that. The thing is, sometimes when we look in mirrors, we only see what we think of as our flaws.

“Oh, is my hair messed up?”

“Ugh, my face looks weird.”

But mirrors can also show the features that we like—whether you have “perfect” lips or sparkling eyes or whatever else. 

So do you choose to focus on the good or the bad? Because here’s the thing—because mirrors can only show what’s on the outside, mirrors are actually very limited if you think of it that way. And if others choose to see only what’s on the outside of a person—not their personalities or passions—then those people are pretty limited, too.

If people choose to “see” me based on my legs, then that is their choice and their problem. And they really don’t see me at all. They don’t see all I’ve gone through. They don’t see my accomplishments or my sorrows. The only thing they see—or choose to see—is legs and feet that turn in a little. Wow. What a limited view.

So how do you see yourself? 

The next time you need to reflect on yourself, don’t look in a mirror! No matter how much we all rely on it, a mirror can only show us so much!


Sunday, July 4, 2021

Why I Love Fireworks (And Why I Don’t)

 


Happy July 4th!! Happy birthday, America! In honor of the holiday, you may have celebrated. Maybe that included a barbecue or brunch with family. Maybe you watched movies. Most likely, you also either purchased or saw fireworks. 

Fireworks are big and beautiful and sparkly. They go off with a boom that signals you that a firework is coming. No big deal, right? Just a signature sound. If you think that, your experience is oh-so-different than mine. As a person with SPD (sensory processing disorder), that sound is not far off from torture. I think my dog and I are in total agreement. (He hates fireworks.) Fireworks are so pretty, but without headphones, the noise would make me cower and hold my ear closed with my finger and/or shoulder. I love the fireworks, but I can only sit outside and watch for a few minutes before the sound overwhelms me—sometimes even with headphones on. I always feel like I’m spoiling the fun when I say I’m ready to go inside. 

To solve this problem, my family gets sparklers that don’t make any sound. They’re pretty and they don’t make noise. But when the sparkler lights on fire and makes a flash, I guess I either expect it to make noise or burn my hands. (I almost burned my shirt once.) In spite of my sensory problems, I enjoy waving sparklers around my backyard and celebrating the Fourth of July.

The birth of America is really special, and there are different ways to celebrate it. Maybe fireworks aren’t for me, but that’s okay. There are plenty of things that I can do to celebrate.